In 2022, Aimed Alliance recognized that health disparities exist in the inflammatory bowel disease (“IBD”) patient population. With rates of IBD continuing to increase over the last several years, there is a need to identify the root causes of outcome disparities for patients with IBD and develop solutions to redress these causes. To identify sources of inequality within the IBD patient community, Aimed Alliance convened a panel of experts and others with a strong understanding of the IBD patient community, including pharmacists, patients with IBD, health care professionals, community leaders, health educators, and advocacy organizations. This group of participants was able to speak to the experiences of IBD patients and share knowledge related to IBD care, minority health, and community outreach. Ultimately, the panel’s discussion identified grassroot access problems and best practices that should be used to engage impacted communities. Aimed Alliance has summarized the concerns and practices raised during the roundtable meeting, and the report is now available here.
The reports findings’ and recommendations have been endorsed by: Yvonna Hall-Northeast Ohio Black Health Coalition; Gaylyn Henderson, Gutless and Glamorous; Delisa Richardson, patient advocate IBD Warrior Podcast; and Trip Logan, Community Pharmacist with a focus on health equity.
In conjunction with Aimed Alliance’s “Health Equity in IBD” project, Aimed Alliance has developed new resources for patients with IBD. These new resources include (1) a brochure on the Americans with Disabilities Act and how some individuals with IBD may qualify for these protections; (2) a brochure on the Family Medical Leave Act which permits eligible employees with IBD to take protected time off for certain medical conditions; and (3) a brochure on how to appeal a health benefit denial. Use the links below to access these new resources in English and Spanish.
(1) Know Your Rights: The Americans with Disabilities Act – English Spanish
(2) Know Your Rights: The Family Medical Leave Act – English Spanish
(3) Know Your Rights: The Health Insurance Appeals Process – English Spanish
Last Updated on September 29, 2023 by Aimed Alliance
